What a fantabulous couple of weeks it has been with my “new ears”! No, it’s not perfect, but I’m aware it never will be. However, I already hear noticeably better than before the surgery, so even if improvement stopped right now, I’d consider the cochlear implants a success!
But I’m assured that there will be a lot more improvement so it’s definitely All Good™!
At the clinic
For now, the fine tuning of the map (program) of my cochlear implants and associated hearing rehabilitation is on a weekly basis. So, on the last two Thursdays, I returned to the Lions Hearing Clinic to see my audiologist, Roberta.
I am very well looked-after at the clinic. Everyone is so helpful and genuinely wants me to hear as well as possible. It’s not “just a job” to them.
In the last two sessions we have worked to make sure the sound was more balanced between the two implants and between the individual channels of the implants, and the overall volume has been turned up several steps.
We also started on some rehabilitation exercises and Roberta, after quickly running through a few to find out the level of speech understanding (without looking) I was at, gave me some to take home and do for “homework”.
Homework
I had been interested to know what form these rehabilitation exercises would take. I haven’t done the second week’s homework yet, but in the first week they were very simple exercises (although they will get harder as I progress) of two types. In the first type, the clinician (the audiologist or the person helping with the homework) tells the patient (me!) either a clue topic or a specific phrase, then — without the patient being able to see the clinician’s mouth, the clinician reads several sentences which the patient then has to repeat. In the second type of exercise, the patient is given a list of sentences and when the clinician reads them out, the patient has to identify that sentence on the page.
Andy did the first week’s homework with me and I (predictably) did quite well as I’ve always been good at guessing what people are saying. However, I only actually hear a few words without looking and do have to guess. I didn’t do as well with sentences like, “Children look forward to Halloween in the Fall,” because that is so far from anything I would have expected that there was no way I would have guessed it! Children don’t think much about Halloween here at all — almost no one in Australia does — and nor is Halloween in the Fall — and if it was, it would be called Autumn! I was a bit cross about this — I am not American! Roberta told me the next time I was at the clinic that there is some Australian-based therapy but unfortunately it hasn’t been quite so well thought-out. Blah!
But anyway, before the surgery I could hear nothing without looking at people’s faces and my guessing was done while speech reading, so there’s massive progress there.
The hearing experience
Over the last couple of mapping sessions I have noticed that when the volume is increased, so too is the detail in what I hear. This surprised me, no doubt because that was not the case with hearing aids. If I was hearing muffled sound with hearing aids, turning them up meant I would hear louder muffled sound. It shouldn’t have surprised me though, because those things I now wear behind my ears are called “speech processors” for a reason — they are far more than the mere amplifiers that hearing aids are. It’s just that this is so different to my previous experience.
I walked out of the clinic a week after switch-on and heard a bird tweet for the first time in about 25 years.
I went to work and was putting something in the fridge and someone spoke to me, so I turned to look at her. She looked very surprised and said, “You knew I was talking to you! Before, you wouldn’t have even realised.”
I can now hear the garage door going up and down, and the beeps when the pads on the microwave oven are pressed are quite loud, and I can hear the beeps or pings when the microwave has finished cooking, too. I didn’t even know till now that the buttons on EFTPOS handsets beep. I can hear my kitten meow and can hear her purrs after a fashion (they sound a bit crackly). I couldn’t hear any of these things before.
When I listen to music now, the buzzes and extraneous noises are totally gone (yay!) though I still cannot always make out the tune, and (as with speech) louder is clearer. Every now and then I will hear some instrument or instrumental pattern that I hadn’t previously realised was a part of the music and without fail that puts a big grin on my face! Likewise when I suddenly clearly distinguish words or phrases being sung that previously were incomprehensible mumbles.
Stand-out experiences
One day at lunch, I hadn’t been aware of anyone coming up behind me, but out of the blue I clearly heard a voice say, “Can I get you another glass of water?” I was able to turn around and reply, “No thank you, I’m fine,” without having to ask the person to repeat it. In fact, it is amazing enough that I knew someone had spoken to me at all, let alone heard (yes, heard!) what they said. What a buzz that gave me!
Another day, I was seeing someone out of my office and we were standing in the doorway, talking. Suddenly, my magnet popped off my head and attached itself to the doorframe! After a moment of total shock I had to crack up laughing. It kept me chuckling for most of the day. I told Roberta about this and she was unsurprised, and said that people report their magnets jumping off their heads onto fridges and all kinds of things!
Using my mobile phone
On one occasion, I found myself lost (long story!) and was running very late for a meeting and I was somewhat anxious about it so I phoned the receptionist at work to ask her to pass on a message from me.
Well, that was interesting. I automatically reached up to remove my hearing aid as I had previously heard better on my mobile phone without it than with it. Quite a “duh!” moment as I remembered that things are different now and I’m deaf as a door post without the speech processors! I scrambled for the remote control so I could try switching to T (telecoil) mode if necessary. I had no idea if my mobile phone even had a telecoil. Anyway, I dialed and held the mobile phone up to my speech processor, and the phone started to ring and it was very faint so I switched the telecoil on. Louder — but lots of interference. Blah.
I didn’t hear what the receptionist said when she answered the phone at all so did my usual trick when I don’t hear — talk away and don’t let anyone get a word in edgewise! If they don’t get a chance to speak to me, I won’t mishear! I explained my situation rapidly and did get (or guess!) the “I’ll let her know” when I finished my spiel and then I said thank you and hung up quickly, glad to have that out of the way!
So there was my first telephone conversation post-implant. And I have to say, I’m not in a hurry to repeat it, especially now I know my mobile phone doesn’t work well with the implants. Next time I won’t use the telecoil, that’s for sure.
I told Roberta about this experience and she suggested turning the phone over to speaker phone for now, and said that we’ll “start working on using the phone” in a couple of weeks. I’m looking forward to that in a way, but for so many years I have associated even the thought of using the telephone with such huge stress that I think it will be an “interesting” although exciting process.
In any case, it’s progress! And still all very exciting.
Michael says
I have to say that you sound like a little child discovering the world around. But I get it must be really some kind like that for you at the end after 25 years!
Reading your lines I start to feel excited myself about every success you have and share with us and I’m wishing you all the best for a constant improvement.
All the Best,
Mac :-)
Vicki says
Thanks Mac! Yes I feel quite child-like but then again, all new experiences make me feel like that. :-) I forgot to mention my first experience with watching tv, or that I listened to audio books while following with the printed words, or being able to hear conversation in a noisy restaurant far more easily than before… honestly, the way I no longer have to keep asking people to repeat themselves is uplifting in itself! There are so many new and exciting things happening relating to these “new ears” of mine!
Gary Barber says
I’m grinning here from ear to ear.
Didn’t I say it would be like a rebirth, a new life. Keep going Vicky we are all here for you hugs
Vicki says
Gary, don’t doubt for a second that I’ll keep going! Thanks, as always, for your ongoing support!
Abbie says
Oh it will get SO much better :) What you are hearing now, won’t be the same in a month and so on so forth. I just loved reading your recap, it is going to be a great journey for you :)
Happy Hearing!
prisca says
Vicki :-)
wow, love reading about how your life is changing now… amazing… really makes me realise how wonderful sound is – like hearing you little cat meow and purr :)
I hope you will see more and more improvements – and stay as excited and as happy as you are now :)
wishing you all the very, very best!
hugs
PS: speaking of cats – have you seen these 3 clips on YouTube? – I think they work with or without sound :) just for us cat people :)
Simon’s Cat: Cat Man Do – TV Dinner – Let Me In!
valerie says
Like Abbie said it gets so much better. It is like a rebirth, a priceless time. I teared up as I read hearing the birds the first time in 25 years. I know how you feel. Each day when I put my cochlear implants on, it gives me a sense of freedom and excitement. Enjoy.
Peternotpetey says
onya Vicks
Vicki says
Abbie — I had to go look at your blog — we seem to have a fair bit in common! Thank you for your encouragement. Valerie too — that is the mind-boggling thing to me, that I feel I’m doing so well but it’s going to get better — how amazing!
Prisca, you are a sweetie — thank you! Loved the animations — had seen Cat Man Do before and loved it but hadn’t seen the others. They are so… realistic! ;-)
Petey — ta, mate!
Kate says
Hi Vicki,
This is such a wonderful post, it makes me want to cry! I second what Michael says – that you sound like a child learning about the world :) It must have been so wonderful to hear simple things, like the bird chirp or cat purr. Both of those things are absolute joys in my life and I couldn’t imagine it without them. Reading about your experience and journey is really insightful :)
Cheers, Kate (met you at perth bloggers meetup a few months ago BTW!)
Vicki says
Hi Kate, of course I remember you. Thanks for your good wishes — everything is just wonderful! — and I hope to see you at Bloggers again soon. :-)
Derek Featherstone says
Hiya Vicki – another great post… I just love reading about your new discoveries or re-discoveries.
I must say, though, that this line just sent my heart fluttering and brain spinning:
What an experience you must be having… thanks for sharing! Can’t wait to see you in November :)
Gavin says
Hi Vicki, this is beautiful, magic stuff — thank you for sharing. I hope I will get the chance to speak with you again some day. Properly. :-)